My name is Clancy Pye & on Saturday 13th November 2021, I will be running a half marathon to raise funds for "FAST" (Foundation for Angelman Syndrome Therapeutics") 

On September 10, 2019 my little 3 year old nephew, Ted Johnston, was diagnosed with Angelman Syndrome. 

Angelman Syndrome is a rare neurogenetic disability caused by a problem with the UBE3A gene on chromosome 15. It affects mainly the nervous system and causes severe intellectual and physical disability. Symptoms include inability to speak and sometimes walk, movement and balance problems, sleep and feeding issues & life threatening seizures. Those with Angelman Syndrome are known for displaying frequent laughing, smiling and an excitable demeanour. You can learn more about Angelman syndrome here.

"FAST" is an incredible organisation of families and professionals dedicated to assisting individuals living with Angelman Syndrome to realise their full potential and quality of life through funding research, education, and advocacy. It's focus is on raising funds to support treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.

By contributing to Ted's Angel fund, all donations will be going directly to "FAST" who WILL utilise money raised to support research efforts to facilitate a cure for Angelman Syndrome. However big or small your donation is, it is highly appreciated and it WILL make a difference. 

As a family, we will support "FAST" throughout Ted's life & will dedicate ourselves to doing whatever we can to support research into therapeutics that will improve the lives of those living with Angelman Syndrome. There are numerous clinical trials already underway & many more in the pipeline which have the potential to make a huge difference for individuals and families living with Angelman Syndrome. 

If you would like to join us in fundraising for FAST, we would love for you too to become one of Ted's Angels. You can support this campaign or even create your own Fundraiser. Every cent raised will make a difference in bringing a cure for Angelman Syndrome closer. 

Your generous support is hugely appreciated! 

Clancy xx

Donations made through this platform are secure and will be remitted directly through to FAST Australia.